The main task of the Eurotransplant Registry is to collect transplant follow-up data.
Data collection and analysis
Data collection and analysis is necessary both for enabling Eurotransplant to be accountable for its allocation activities and for increasing the scientific value of the organization. The Eurotransplant Registry is therefore of central importance for the long-term success of Eurotransplant. Two of the key tasks of Eurotransplant are organ allocation and the development of allocation algorithms. In order to be able to perform these tasks data on the patients on the waiting list, organ donors, the allocation process, organ recipients, the transplantation and the outcome of the transplantation process have to be collected and analyzed.
All data collected by Eurotransplant play a key role in refining organ allocation aiming at the continuous improvement of the match between organ and recipient. This refinement aims to improve outcome after transplantation. Which type of recipients stand the best chance of survival with which type of organs? Is there a difference in outcome in age groups or with genders? The Eurotransplant Registry provides as complete as possible datasets to biostatisticians, doctors and medical researchers to facilitate analyses and innovation in organ matching, donation and transplantation.